Showing posts with label need a kidney. Show all posts
Showing posts with label need a kidney. Show all posts

Monday, February 6, 2017

When your friend needs a kidney



This is Terry.  I met him through a friend of mine.  She mentioned that Terry has been on dialysis for 5 years and needs a kidney.

Terry's story is common.  Due to a genetic disease, PKD (Polycystic Kidney Disease), his kidneys are failing.  His life has dramatically changed from working as a truck driver, riding his 2003 Harley and hanging out with friends.

Now, he spends 3 days a week, four hours each day, hooked up to a dialysis machine.  That won't last forever.  Even though there have been a lot of advancements in dialysis, time will run out.  Dialysis is a temporary fix.  It's benefits come at a cost.  You don't hear a lot about people on dialysis dying of kidney failure.  Many times, these patients die because of the tremendous stress on their heart.

The only way that Terry can regain his strength (He can't even lift 20 pounds anymore) and stamina is with a transplant.  He's done all of the things that his doctors have advised.  And, yes, he is on the waitlist.

Terry's blood type, O, could make him a universal donor (if only he were healthy). However, he can only receive a kidney with someone with Type O blood. The waiting time is long for a Type O kidney from someone is deceased. If Terry gets a kidney from a deceased donor, it will allow him to live dialysis free for an average of 7-10 years. However, with a kidney from a living donor (like I did), the "lifespan" of the kidney can double!    

And here's a sad statistic.  Every day, 18-20 people die while they are waiting for a life-saving transplant.  (Click on my "about" button to learn why I decided to give.)

Some people automatically rule themselves out because they don't have the right blood type. But there is still a way.  If someone began the testing process and "qualified" as a suitable donor, s/he could donate in something called a paired exchange.  Here's a link from the Living Kidney Donor Network (www.lkdn.org) Click here to learn how any blood type could help Terry.

I challenge you to learn more about kidney donation.  Choosing to step forward is a big decision.  It's very personal.  You can find out information about the process at the Piedmont Hospital in Atlanta, GA by visiting this website. Call the Transplant Center's number (888-605-5888) and tell them Terry's information (His name and birthdate 3/26/58). The transplant center can answer any questions that you might have. There is even a screening form on the website.  Again, it's anonymous.  Check it out.  Who knows?  You might even be a good donor candidate.  I was floored to learn that I could donate a kidney at age 54.

I had many questions:
  1. Could I afford it? Yes, because the testing, procedure and follow up would all be paid by my recipient's insurance (at no cost to her) 
  2. Would I have huge scar?  Most likely no.  Most donors are operated on as a laporoscopy ( 3 small incisions and one a few centimeters long). 
  3. Would I have to take medication after the surgery? No. As a matter of fact, I went right back to my normal life. (Well, except for the fact that I became much more grateful for my health.)
The process is anonymous and comes with no pressure from the medical team.  If it's not something that you would consider, inform yourself so that you can support someone who does get tested.  It can also help if you know someone who is waiting for kidney. Someone like Terry.  Just a thought.

Wednesday, September 21, 2016

We're Going Live!


 Have Your Donor Find YOU!


For the second time, the AAKP (American Association of Kidney Patients) has invited Harvey Mysel, director of the Living Kidney Donor Network, to facilitate a workshop at their National Patients Meeting at the Nashville Marriot. When I was considering donating a kidney, I learned a lot from Harvey's website.  We're going to go live right before the session gets going. Tune in at 12:30 CST.  I'll introduce you to Harvey and some of the folks involved with the American Association of Kidney Patients.  I also hope to meet some of the folks who, just like you, need to find a donor. 

 There a few spaces left.

Click here to email or call 312-473-3772 to reserve your spot. Ask a friend, family member, or an advocate to attend with you so they could help you with your "Kidney Kampaign." 
Click here to learn more about the workshop.  

Can't make it?  That's okay.  Click here to visit the Living Kidney Donor Network to learn more. 


Tuesday, August 16, 2016

Have Your Kidney Donor Find You!


In Need of a kidney transplant or know someone who is? The Living Kidney Donors Network & the American Association of Kidney Patients invite you to a complimentary, hands-on workshop!

Thursday, September 22, 2016, 1:00-3:30 p.m.
 at the Nashville Marriot Airport-Nashville Ballroom A-B, 600 Marriot Drive, Nashville, TN 37214

Limited seating, so please register: workshop@LKDN.org
For more information,